Marfan Trust

The Marfan Trust’s three main objectives are:

1. To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.

2. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.

3. To provide peer-to-peer support and medical guidance to those affected and their families.

Our website includes information on the medical aspects of Marfan syndrome; advice and guidance on living with Marfan syndrome; updates on our latest research projects and publications and ways to support the Trust’s important work.