Rare Chromosome Disorder Support Group (Unique)
Unique is a source of information and support to families and individuals affected by any rare chromosome or newly discovered gene disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free - the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.
Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome or gene disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders. Unique co-ordinates families to assist in research and has private facebook groups for registered members. It publishes a magazine three times a year. Unique hosts occasional family events in the UK as funding permits. Unique has over 30,000 affected members and many relevant professional members worldwide in over 100 countries.
Who to contact
- Name
- Dr Sarah Wynn
- Position
- Chief Executive Officer
- Telephone
-
01883 723356
- info@rarechromo.org
- Website
-
http://www.rarechromo.org
- Social Media
-
Find us on Facebook
Follow us on Twitter - Address
-
The Stables
Station Road West
Oxted
Surrey - Postcode
- RH8 9EE
Where to go
- Name
- The Stables
- Address
-
Station Road West
Oxted
Surrey - Postcode
- RH8 9EE
- View RH8 9EE on a map
- Area served
- All Suffolk
- Parking available
- No
Other details
- Age Groups
- Pre-school, Children (5-11), Adults, Young people
- Notes
We can provide information and links with anyone affected by a rare chromosome disorder. We hold occasional family events, workshops and have private social networking groups for our members
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