Shropshire Council website

This is the website of Shropshire Council

Contact information

Email

customer.service@shropshire.gov.uk

Telephone

0345 678 9000

Postal Address

Shropshire Council
Shirehall
Abbey Foregate
Shrewsbury
Shropshire
SY2 6ND

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Coronavirus (COVID-19)

Please note that in light of the ongoing Coronavirus (COVID-19) pandemic, users should take heed of the current information available from GOV.UK: https://www.gov.uk/coronavirus

Therefore, the groups, clubs and societies listed within the Shropshire Community Directory may still be unable to meet, and there may also be a reduced service available from other local and national organisations.

For more information, please contact the individual groups or organisations listed. Stay alert and stay safe.

SWAN UK

Description:

SWAN UK is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK.  It is run by the charity Genetic Alliance UK.

SWAN stands for ‘syndromes without a name’, which is a term used when a child or young adult is believed to have a genetic condition but testing has failed to identify its genetic cause.  Syndromes without a name are also referred to as undiagnosed genetic conditions, unknown genetic conditions or undiagnosed genetic disorders.

Children affected by a syndrome without a name might be affected by learning difficulties and / or physical disabilities. They can sometimes have complex medical needs and may have epilepsy.  Children affected by a syndrome without a name can have a range of different symptoms and each child is likely to be affected differently.

For more information, please follow the link to visit their website.

Contact Details

Address:
Genetic Alliance UK
SWAN UK
CAN Mezzanine
49-51 East Road
London
Postcode:
N1 6AH
Telephone:
020 7831 0883
Email:
info@undiagnosed.org.uk
Website
www.undiagnosed.org.uk

Additional Information

Notes:

Page last reviewed:
27/08/2019
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