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Chromosome 18 Registry and Research Society (Europe)

Description:

The Chromosome 18 Registry and Research Society (Europe) is a charity set up to bring European families affected by any chromosome 18 abnormalities together to share information and experiences.  The organisation covers all chromosome 18 abnormalities: 18q-, 18p-, Ring 18, Tetrasomy 18p and inversions of chromosome 18.

The European Society is affiliated to the Chromosome18 Registry and Research Society based in the USA, and their mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.

The Society aims to bring the latest research done by the Chromosome 18 Registry and Research Society in Texas to people affected by all chromosome 18 disorders and their families in Europe.  To do this, they run family conferences where affected children and adults, parents, siblings, relatives, friends and professionals get together to laugh, learn and play together.

For more information, please follow the link to visit their website.


Contact Details

Name:
The Secretary
Email:
bonnie18qmum@btinternet.com
Website:
www.chromosome18eur.org

Additional Information

Notes:

Page last reviewed:
31/01/2019

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