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customer.service@shropshire.gov.uk

Telephone

0345 678 9000

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Shropshire Council
Shirehall
Abbey Foregate
Shrewsbury
Shropshire
SY2 6ND

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Ehlers Danlos Support UK

Description:

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome.

Our website can help you to understand your condition and the impact it may have on your lifestyle as well as providing you links to information and support groups in your area.

Advice for parents of young children with classical EDS

Most people, especially children, don’t want to appear different or be treated differently. However, restricting some activities and using additional protection is recommended for children with classical EDS. Parents need to find a balance between restrictions and risks. Children need to be allowed to lead as normal a life as possible but without exposing them to unnecessary risks. It is very difficult to produce an exhaustive list of ‘Do’s and Don’ts’ but a sensible approach is needed to avoid very high risk activities. It is always important to focus on the health of the child which not only includes providing a safe physical environment but also their emotional wellbeing. They may need some extra support and understanding.  Be flexible so that alternatives can be offered where participation in a particular activity is not safe.

 

Venue Details

Address:
PO Box 748,
Borehamwood
Postcode:
WD6 9HU
View WD6 9HU on a map | Get directions to WD6 9HU

Contact Details

Telephone:
0208 736 5604
0800 907 8518
Website
Ehlers Danlos Support UK website
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