Spinal Muscular Atrophy Support UK

Description:

Spinal Muscular Atrophy (SMA) Support UK is a UK wide service supporting and empowering families and individuals affected by all forms of SMA. They are advocates for better services and access to new treatments, raise awareness of the condition and help fund and facilitate research related initiatives.

They have a wide range of condition and research related information on their website and are accredited by the NHS England Information Standard.

You can contact them by phone or email and, if you are newly diagnosed, one of their Outreach Workers can visit you.  You may also request a visit if you have been recently bereaved by SMA. They also offer a number of ways to have contact with others who have personal experience and understanding of SMA.

However, they do not provide a medical service or medical advice - this must come from your medical team.

For more information, please follow the link to visit their website, or contact using the details provided.