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FND Hope UK logo

FND Hope UK

Description:

FND Hope UK is a registered charity whose mission is to promote awareness, support affected individuals, and advance research for the prevention, treatment and recovery of Functional Neurological Disorder (FND)

Functional Neurological Disorder is a problem with the functioning of the central nervous system, rather than structural disease.  It is the brain’s inability to send and / or receive signals correctly. Neurological symptoms range from paralysis, weakness, fits, seizures, fatigue, sensory issues, gait issues, and many more.  Functional symptoms in their wider definition are the second most common reason for a new neurology consultation, with functional neurological disorders such as functional movement disorders or dissociative (non-epileptic) attacks accounting for 6% of referrals, which is more than MS (4%) and Parkinson’s disease

FND Hope’s grassroots advocacy work began in April 2012, when fndhope.org became the first patient based website specifically for patients diagnosed with Functional Neurological Disorder.  The site originally provided a handful of pages containing information, most of which was not available elsewhere.  

FND Hope UK was the first non-profit organisation providing support in the UK.  Together FND Hope in both the UK and US continue to forge ahead connecting researchers & patients, whilst building awareness through online social media outlets and engaging in medical discussions to influence various issues surrounding FND.  Together the registered charities aim to change how functional symptoms are understood and defined globally and work in a concerted manner to advocate for all those effected by the condition.

FND Hope and its affiliates provide current information and dispel biased stereotypes and myths.  For more information, please follow the links to visit their website and social media.


Contact Details

Address:
21 Chetwode
Banbury
Oxfordshire
Postcode:
OX16 1QN
Name:
Dawn Golder
Email:
contact@fndhope.org
Website:
https://www.fndhope.org

Additional Information

Notes:

Registered charity in England and Wales (1173607) and Scotland (SC048333).


Last Updated:
11/04/2019

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