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customer.service@shropshire.gov.uk

Telephone

0345 678 9000

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Shropshire Council
Shirehall
Abbey Foregate
Shrewsbury
Shropshire
SY2 6ND

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Myositis logo

Myositis UK

Description:

Myositis UK is a small national charity providing information to those affected by myositis.

The charity provides information, advice and support about the rare group of diseases known as the inflammatory myopathies, which includes dermatomyositis, juvenile dermatomyositis, polymyositis, inclusion body myositis, and myositis antisynthetase syndrome.

They provide this help through their website, newsletters, guides, and publications, as well as providing opportunities for those affected by myositis to engage with others both online and face-to-face, to relieve the isolation that can be felt when someone is diagnosed with a rare disease.

Membership is free, and the charity has a private Facebook group, plus an online community zone. They also organise events throughout the year, and raise funds for research to improve diagnosis and treatment.

For more information, please follow the link to visit their website.

Contact Details

Address:
146 Newtown Road
Woolston
Southampton
Hampshire
Postcode:
SO19 9HR
Telephone:
023 8044 9708 (Monday to Friday, 10am to 3pm)
Fax:
023 8039 6402
Email:
msg@myositis.org.uk
Website
Myositis UK website

Additional Information

Notes:

Registered Charity number: 327791


Page last reviewed:
10/11/2023
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