Genetic Alliance UK
We are the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. We are an alliance of over 200 patient organisations.
We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community.
Our work falls into different categories:
- Reproductive techniques
- Medical research
- Healthcare and delivery
- Access to treatments
- Living and education