PANS/PANDAS UK Charity
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for Medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for Young People age 12-17 with the condition.
Facebook group for Adults
Links to further Research
Advocacy and support from the charity
Who to contact
- Contact Name
- Vicky Burford
- Contact Position
- Secretary
- secretary@panspandasuk.org
- Website
- ww.facebook.com/panspandasuk/
- Scan to visit this website
Where to go
- Notes
All of Reading covered. We provide support via our Facebook group PANS PANDAS UK.
Time / Date Details
- Time of day
-
Morning
Afternoon
Evening - Session Information
-
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.
Costs
- Details
- Free at point of access, supported through the PANS/PANDAS UK Charity.
Availability
- Referral required
- No
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
https://www.panspandasuk.org/for-educators
- Other notes
Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
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Disclaimer
This information has been collected from third party providers therefore the Reading Services Guide, Reading Borough Council (RBC) and Brighter Futures for Children (BFfC) cannot accept responsibility for the accuracy of this information and recommends that parents, carers, young people, residents and professionals check with providers regarding DBS (Disclosure & Barring Service) and OFSTED registrations and CQC registrations. Information collected by Reading Service Guide; is used solely to implement and supply the Family Information Service (FIS), Special Educational Needs & Disabilities - Reading's Local Offer, Adults & Carers Support Group and Reading Youth.
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