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We are a mental health youth board for the North East with over 100 members. We aim to provide support, guidance and representation to young people living in the North East between the ages of 11-25 years who have, or know someone who has, mental health…
0191 477 9966
We are a national charity supporting individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We can provide you with emotional and practical support, financial advice and help, respite breaks, and information about…
01344 771 961
Fax: 01344 762 661
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
Our website aims to help people in pain move forward in their lives with better pain self-management, with or without drugs, and to live a fulfilling and meaningful life, despite having pain. We can give you lots of information, advice and support on self-management of chronic pain.…
We offer advice, contact and support to sufferers of Perthes Disease and their families. We also offer support on a number of other conditions including Osgood Schlatter Disease, Severs Disease, Kohlers Disease and Multiple Epiphyseal Dysplasia. We offer: a telephone helpline contact with local families of…
01483 306 637
Admin: 01483 447 122
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
We are a self-help group for people with Lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for Lupus research and Lupus nurses is an essential part of our work. Meetings are held at the…
01708 731 251
Gaucher Disease is an inherited, enzyme deficiency, disorder. We are a registered charity and work to meet the needs of people suffering from this disorder. Our services include: Providing information about the disorder to keep families, doctors and specialist advisers up to date with the…
01453 549 231
We are an independent, voluntary group run by parents whose deaf children have cochlear implants to help others whose children already have implants and those who are considering cochlear implantation for their child. We offer first-hand experience of the difference that cochlear implantation can make to…
07854 543846
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988

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