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Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
The Child Growth Foundation is a leading UK charity focusing on rare growth conditions affecting children and adults. We aim to: Support and encourage all children or adults with growth disorders and their families, in every way we can. Promote and fund research into the…
0208 995 0257
We are a national charity leading the battle against Crohn’s Disease and Ulcerative Colitis. We’re fighting to achieve a better quality of life for the 300,000 people in the UK suffering physically and emotionally due to these and other forms of Inflammatory Bowel Disease. Ultimately, we…
Helpline 0300 222 5700
We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
We are a registered charity committed to raising awareness of Restless Legs Syndrome (RLS). We provide information and support to anyone living with the condition and aim to improve the quality of RLS care in the UK. We offer: advice support guidance community online forum:…
We are a UK-based charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and has a members area called 'The VitLife' providing access to downloadable resources, offers from third parties…
020 7840 0855
Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…
01325 321 234
Macmillan Joining the Dots County Durham is a free, personal service for people aged 18 and over who have been diagnosed with cancer. We also offer whole family support, including friends, carers and relatives of any age. We support the family with many issues including Physical, Relationship,…
0800 876 6887
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…
01883 723 356
We offer affordable and easily accessible online occupational therapy solutions for schools and parents. This includes an online Sensory Processing Disorder training course and from mid-2019 will include online motor skill development programmes.  All GriffinOT programmes offer you more than a list of activities/strategies to try.…

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