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We are a UK charity for all children with life threatening and life limiting conditions and all those who support, love and care for them. We support families, professionals and services, including children’s hospices. Our work helps ensure that children can get the best possible…
Office: 0117 989 7820
Helpline: 0808 808 8100
The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease.  We…
07900 922 522
0151 3315 444
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…
03030 401102
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Wide Fit Shoes offers free specialist footwear consultation and advice to disabled, SEND and special needs adults and children, their family and carer’s. Local and national advice offered by phone, email or in person. Finding suitable footwear for a range of disabilities and special needs is…
0208 907 1742
We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the augmentative and alternative communication (AAC) needs of people with complex communication needs. AAC systems includes systems such as eye…
0113 343 1533
We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer first-hand experience of the difference that…
07854 543846
We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.We are entirely supported by voluntary donations and fund-raising and run by our members themselves.Our aims…
0345 389 9901
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
01280 821 334 (office)
0300 111 4000 (helpline)

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