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We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK and Ireland meet two or three times a year, offering support and discussing new developments.We publish a magazine three…
01386 430 140
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the augmentative and alternative communication (AAC) needs of people with complex communication needs. AAC systems includes systems such as eye…
0113 343 1533
We provide support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We publish information factsheets and have a network of Specialist Huntington's Disease Advisers covering…
07900 922 522
0151 3315 444
STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.  STARS offers information and advice to patients, carers and…
01789 867 503
We are a charity aiming to provide help and support to people aged 16+ in Tyneside, Wearside, Northumberland and County Durham whose lives are affected by mild to moderate eating distress or eating disorders. We do this by providing a range of services including counselling, groups,…
0191 221 0233
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition, and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
01233 64 81 64
Sightline: 01233 64 81 70
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…
0191 300 1601

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