We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK and Ireland meet two or three times a year, offering support and discussing new developments.We publish a magazine three…
01386 430 140
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
We provide support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We publish information factsheets and have a network of Specialist Huntington's Disease Advisers covering…
07900 922 522
0151 3315 444
STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.  STARS offers information and advice to patients, carers and…
01789 867 503
We are a charity aiming to provide help and support to people aged 16+ in Tyneside, Wearside, Northumberland and County Durham whose lives are affected by mild to moderate eating distress or eating disorders. We do this by providing a range of services including counselling, groups,…
0191 221 0233
Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
We improve the health and wellbeing of people living with HIV. We empower young people to make safe and healthy relationship choices. We also challenge stigma and raise awareness of HIV. We provide HIV support groups and HIV one-to one-support in the home or community.…
07989 155175
Anxiety UK is run by sufferers and ex-sufferers of anxiety disorders. We can provide support and help if you’ve been diagnosed with, or suspect you may have an anxiety condition. With our help you can start to recover your confidence and forget your fear. We…
Infoline: 03444 775 774
Text Service: 07537 416 905
Our epilepsy service covers the County Durham and Darlington NHS Trust area. We work alongside Paediatricians with a special interest in epilepsy and neurologists. Our aim is to educate families about epilepsy. In partnership with families, we develop care plans for schools and educate schools and nurseries about epilepsy. We…
0191 387 6368
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…
0191 300 1601

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