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We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK meet two or three times a year, offering support and discussing new developments.We publish a magazine three times a…
01386 430 140
Living with autism isn’t easy, but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…
The Child Growth Foundation is a leading UK charity focusing on rare growth conditions affecting children and adults. We aim to: Support and encourage all children or adults with growth disorders and their families, in every way we can. Promote and fund research into the…
0208 995 0257
We are a national charity leading the battle against Crohn’s Disease and Ulcerative Colitis. We’re fighting to achieve a better quality of life for the 300,000 people in the UK suffering physically and emotionally due to these and other forms of Inflammatory Bowel Disease. Ultimately, we…
Helpline 0300 222 5700
We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
Reablement is about giving people over the age of 18 years the opportunity, motivation and confidence to relearn/regain some of the skills they may have lost as a consequence of poor health, disability/impairment or an accident. We provide personal social care, help with activities of…
We are a registered charity committed to raising awareness of Restless Legs Syndrome (RLS). We provide information and support to anyone living with the condition and aim to improve the quality of RLS care in the UK. We offer: advice support guidance community online forum:…
We are a UK-based charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and has a members area called 'The VitLife' providing access to downloadable resources, offers from third parties…
020 7840 0855
Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…
01325 321 234

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