We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the augmentative and alternative communication (AAC) needs of people with complex communication needs. AAC systems includes systems such as eye…
0113 343 1533
The Communication Trust is a coalition of more than 50 not-for-profit organisations, who provide support to children and young people with Speech, Language and Communication Needs (SLCN). The members of the Communication Trust offer a variety of services and information to all families in England.…
0207 843 2526
We provide support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We publish information factsheets and have a network of Specialist Huntington's Disease Advisers covering…
07900 922 522
0151 3315 444
We are a voluntary support group for families and adults affected by Sturge Weber syndrome, a rare neurological disorder. We hold a family weekend conference every eighteen months, publish a newsletter every six months and supply information leaflets. Contact us or visit our website for more…
01392 464 675
Fax: 01392 464 675
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK meet two or three times a year, offering support and discussing new developments.We publish a magazine three times a…
01386 430 140
Living with autism isn’t easy, but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…

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