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Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
Education and Resources for Improving Childhood Continence (ERIC) is a national charity providing information and support to children, young people, parents and carers on all aspects of childhood continence including bedwetting, daytime wetting, soiling and constipation. ERIC has lots of useful information, including a series of…
0808 169 9949
We offer a comprehensive information service that helps to put you in control of your healthcare. Our service is intended to help you make choices about your health, from lifestyle decisions about things like smoking, drinking and exercise, through to the practical aspects of finding…
We aim to offer care, support and information to those with diabetes and their families. Our services include: Campaigning for people with diabetes to have an informed choice of insulin. Representing the interests of all those living with diabetes. Gather information and experiences from those…
01604 622 837
Fax: 01604 622 838
STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.  STARS offers information and advice to patients, carers and…
01789 867 503
We are a voluntary support group for families and adults affected by Sturge Weber syndrome, a rare neurological disorder. We hold a family weekend conference every eighteen months, publish a newsletter every six months and supply information leaflets. Contact us or visit our website for more…
01392 464 675
Fax: 01392 464 675
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK meet two or three times a year, offering support and discussing new developments.We publish a magazine three times a…
01386 430 140
Living with autism isn’t easy, but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…
The Child Growth Foundation is a leading UK charity focusing on rare growth conditions affecting children and adults. We aim to: Support and encourage all children or adults with growth disorders and their families, in every way we can. Promote and fund research into the…
0208 995 0257
We are a national charity leading the battle against Crohn’s Disease and Ulcerative Colitis. We’re fighting to achieve a better quality of life for the 300,000 people in the UK suffering physically and emotionally due to these and other forms of Inflammatory Bowel Disease. Ultimately, we…
Helpline 0300 222 5700

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