An enhanced local service for children with musculoskeletal conditions is based within the Rheumatology department at University Hospital of North Durham. We have has dedicated clinical nurse specialists, additional specialist nursing support and therapies all of which provide comprehensive care.
0191 333 2333
We are a national charity supporting individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We can provide you with emotional and practical support, financial advice and help, respite breaks, and information about…
01344 771 961
Fax: 01344 762 661
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
We provide information and support to parents and carers of individuals with severe learning disabilities and challenging behaviour. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126
Our website aims to help people in pain move forward in their lives with better pain self-management, with or without drugs, and to live a fulfilling and meaningful life, despite having pain. We can give you lots of information, advice and support on self-management of chronic pain.…
We offer advice, contact and support to sufferers of Perthes Disease and their families. We also offer support on a number of other conditions including Osgood Schlatter Disease, Severs Disease, Kohlers Disease and Multiple Epiphyseal Dysplasia. We offer: a telephone helpline contact with local families of…
01483 306 637
Admin: 01483 447 122
We offer care and support to help you live independently at home. Our services include: personal care domestic services mental health and dementia care learning disability support end of life care respite care night sits
0191 377 3040
Who are Future Steps? We are a specialist paediatric occupational therapy service committed to changing the life of every child and family we work with. Our team of fully qualified occupational therapists deliver sensory, motor and attachment assessments and provide goal-orientated treatment to children, teens…
01642 807 669
We are a self-help group for people with Lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for Lupus research and Lupus nurses is an essential part of our work. Meetings are held at the…
01708 731 251

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