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We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.We are entirely supported by voluntary donations and fund-raising and run by our members themselves.Our aims…
0345 389 9901
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
01233 64 81 64
Sightline: 01233 64 81 70
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126
Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…
01325 321 234
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…
The Communication Trust is a coalition of more than 50 not-for-profit organisations, who provide support to children and young people with Speech, Language and Communication Needs (SLCN). The members of the Communication Trust offer a variety of services and information to all families in England.…
0207 843 2526
Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
We improve the health and wellbeing of people living with HIV. We empower young people to make safe and healthy relationship choices. We also challenge stigma and raise awareness of HIV. We provide HIV support groups and HIV one-to one-support in the home or community.…
07989 155175
The National Deaf Children’s Society (NDCS) is a charity dedicated to creating a world without barriers for every deaf child. We provide free impartial and unbiased information to families, empowering them to make informed choices for their child. We provide information on all aspects of…
0808 800 8880
Tired Out is Family Fund's sleep support hub for families raising disabled and seriously ill children to find help and information about sleep issues. The hub is a website and was created by Family Fund in partnership with charities such as Scope, National Autistic Society…

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