County Durham's Families Information Service

Living with autism isn’t easy but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…

We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…

01883 723 356

We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…

+447777698581

We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…

General Enquiries: 01634 838739
Family Support Line 0300 666 0126

Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…

01325 321 234

We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.

Helpline: 0808 808 3555

OT Consultant are an independent Occupational Therapy Service offering assessment and training in the North East. We specialize in assessing children who have difficulties with sensory processing, social and emotional regulation, hand writing and managing daily tasks. We are trained developmental play specialists and we teach parents and…

0191 384 5779

If you have epilepsy, or care for someone who does, we can provide advice, information and advocacy to support you. We have advice workers who can meet you by appointment in the office, or we will visit your home if necessary. Our services include: free…

01429 297 007

The Child Growth Foundation is a leading UK charity focusing on rare growth conditions affecting children and adults. We aim to: Support and encourage all children or adults with growth disorders and their families, in every way we can. Promote and fund research into the…

0208 995 0257

Education and Resources for Improving Childhood Continence (ERIC) is a national charity providing information and support to children, young people, parents and carers on all aspects of childhood continence including bedwetting, daytime wetting, soiling and constipation. ERIC has lots of useful information, including a series of…

0808 169 9949

County Durham's Families Information Service

Autismlinks

Unique - Understanding Chromosome and Gene Disorders

Heartline Families

Challenging Behaviour Foundation

Pioneering Care Partnership (PCP)

Contact - For families with disabled children

Occupational Therapy Consultant - Caroline Clay

Epilepsy Outlook

Child Growth Foundation

ERIC (Education and Resources for Improving Childhood Continence)

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