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The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease.  We…
07900 922 522
0151 3315 444
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…
03030 401102
Psychosis teams work within the community setting to provide a service to clients over the age of 18 years who have diagnosed psychosis disorders and to offer support to their families. Our teams offer a variety of treatment options to aid recovery and promote independence. Matching…
0191 333 6011
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.We are entirely supported by voluntary donations and fund-raising and run by our members themselves.Our aims…
0345 389 9901
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
01280 821 334 (office)
0300 111 4000 (helpline)
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
01233 64 81 64
Sightline: 01233 64 81 70
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…
01883 723 356
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126

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