We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…
01883 723 356
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126
Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…
01325 321 234
We are a UK-based charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and has a members area called 'The VitLife' providing access to downloadable resources, offers from third parties…
020 7840 0855
We are a national charity dedicated to providing information and support to anyone affected by multiple sclerosis (MS), including families, carers, health professionals, friends and colleagues. Everyone here at MS-UK understands the challenges that are felt by people living with MS, whether they are emotional…
Freephone helpline: 0800 783 0518
Living with autism isn’t easy, but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK meet two or three times a year, offering support and discussing new developments.We publish a magazine three times a…
01386 430 140
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…
The Communication Trust is a coalition of more than 50 not-for-profit organisations, who provide support to children and young people with Speech, Language and Communication Needs (SLCN). The members of the Communication Trust offer a variety of services and information to all families in England.…
0207 843 2526
We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the augmentative and alternative communication (AAC) needs of people with complex communication needs. AAC systems includes systems such as eye…
0113 343 1533

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