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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and…
01427 718 093
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
0300 111 4000 (helpline)
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
There are different levels of intervention to provide continence support to children, young people, and their families. Level 1 is an early intervention which includes advice and guidance from the 0- 25 Family Health Service Team. This provides support for toilet training, night-time wetting, day-time…
Children's Continuing Care (CCC) is for children and young people aged up to 18 years whose needs cannot be met by commissioned services. Eligibility is decided by a team of specialist nurses using a decision support tool which has been developed nationally as part of…
Continuing Health Care is an arrangement equivalent to CCC for people over the age of 18 years but is slightly different. To be eligible for NHS Continuing Health Care a person must be assessed by a multi-disciplinary team of health care professionals who will look…
The SEND Code of Practice recommends the provision of either a Designated Medical Officer or a Designated Clinical Officer. Across County Durham, a permanent Designated Clinical Officer (DCO), was appointed in 2019 and is employed by North East and North Cumbria Integrated Care System. The…
For more information around services and support for carers in County Durham please see our website.
Children's hospice services are available for families who are entitled to Continuing Care for Children (CCC) to provide respite as well as end of life care and support. Although there are no children's hospices in County Durham, families can access services outside the county, including…
Humankind is a service that supports young adult carers. Young adult carers are young people aged 14 to 25 years old who provide unpaid care for a family member or friend with an illness or disability, mental health condition or an addiction. The impact of…

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