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The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease.  We…
07900 922 522
0151 3315 444
We are a national charity for people with Obsessive Compulsive Disorder (OCD) and the related disorders such as Body Dismorphic Disorder (BDD), Compulsive Skin Picking (CPS), and Trichotillomania. We all know how isolating OCD can be, it can make you feel trapped and cut off…
0300 636 5478
We are national charity for people with lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for lupus research and lupus nurses is an essential part of our work. Meetings are held at the convenience…
01708 731 251
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…
03030 401102
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Living with autism isn’t easy but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
01280 821 334 (office)
0300 111 4000 (helpline)
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…
01883 723 356
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
We are a UK-based charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and has a members area called 'The VitLife' providing access to downloadable resources, offers from third parties…
0300 770 1249

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