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We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Our epilepsy service covers the County Durham and Darlington NHS Trust area. We work alongside Paediatricians with a special interest in epilepsy and neurologists. Our aim is to educate families about epilepsy. In partnership with families, we develop care plans for schools and educate schools and nurseries about epilepsy. We…
0191 387 6368
We offer a range of therapeutic services for children, young people and their families who experience moderate to severe emotional/mental health problems, including direct and indirect clinical work through consultation and training. Our Multi-disciplinary teams may include child psychiatrists, psychologists, nurses, social workers, primary mental…
0300 123 9296
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
01280 821 334 (office)
0300 111 4000 (helpline)
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder, and to professionals who work with them. We offer contact with families where someone has the same rare chromosome or gene…
01883 723 356
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126
Pioneering Care Partnership (PCP), is an award-winning, highly respected user-led charity. PCP mission is ‘Health, Wellbeing and Learning for All’ and we aim to ‘support the development of individual and community capacity by creating opportunities to improve the health, wellbeing and life chances of disadvantaged…
01325 321 234
We are a UK-based charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and has a members area called 'The VitLife' providing access to downloadable resources, offers from third parties…
020 7840 0855
We are a national charity dedicated to providing information and support to anyone affected by multiple sclerosis (MS), including families, carers, health professionals, friends and colleagues. Everyone here at MS-UK understands the challenges that are felt by people living with MS, whether they are emotional…
Freephone helpline: 0800 783 0518
Living with autism isn’t easy, but finding out all about it should be. Some estimate that one in every hundred people have autism. There’s lots of support and advice out there to help you make sense of the world of autism. Charities, support groups, and specialist service providers, are…

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