We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition, and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
01233 64 81 64
Sightline: 01233 64 81 70
Anxiety UK is run by sufferers and ex-sufferers of anxiety disorders. We can provide support and help if you’ve been diagnosed with, or suspect you may have an anxiety condition. With our help you can start to recover your confidence and forget your fear. We…
Infoline: 03444 775 774
Text Service: 07537 416 905
We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.We are entirely supported by voluntary donations and fund-raising and run by our members themselves.Our aims…
0345 389 9901
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988
We are a self-help group for people with Lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for Lupus research and Lupus nurses is an essential part of our work. Meetings are held at the…
01708 731 251
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
Gaucher Disease is an inherited, enzyme deficiency, disorder. We are a registered charity and work to meet the needs of people suffering from this disorder. Our services include: Providing information about the disorder to keep families, doctors and specialist advisers up to date with the…
01453 549 231

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