As part of the National CJD Surveillance Unit, the National CJD Care Team was set up in 2001 to monitor cases of Creutzfeldt-Jacob Disease throughout the United Kingdom.

When a patient is referred to us, once a diagnosis of probable or possible CJD is made, our coordinator makes direct contact with the family and offers the opportunity to meet and to assist with care planning.

Once contact is made, the coordinator can meet with the patient, family, and the professionals involved in care, on a regular basis, depending on need. We provide valuable expertise in nursing patients with CJD. We can anticipate and prevent some problems that may arise by offering skilled advice and education.

When is it on?

Session information
Monday to Friday 9.00am - 5.00pm

Who to contact

0131 537 2128
Fax: 0131 343 1404

Where to go

The National Creutzfeldt-Jakob Disease Research & Surveillance Unit
Western General Hospital
Crewe Road

Other details

Cost description
All services are free of charge.

Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.

Journey planner

Address: Western General Hospital  Crewe Road  Edinburgh 

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