Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.

To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website: www.RetinaUK.org.uk.

When is it on?

Time of day
Morning
Afternoon

Who to contact

Contact name
Retina UK
Telephone
01280 821 334 (office)
0300 111 4000 (helpline)
E-mail
services@RetinaUK.org.uk
Website
https://retinauk.org.uk/
Notes

Charity number 1153851

Where to go

Name
Retina UK
Address
Wharf House
Stratford Road
Buckingham
Buckinghamshire
Postcode
MK18 1TD

Local Offer

Local Offer description

In addition, the UK Care Pathway for People with RP - is a good guide to the various issues that someone newly diagnosed with RP may be experiencing.

Contact name
Helpline
Contact telephone
0300 111 4000
Contact email
services@retinauk.org.uk
Disclaimer

Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.
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Journey planner

Address: Wharf House  Stratford Road  Buckingham  Buckinghamshire

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