Batten Disease Family Association (BFDA)
We are a charity who support families, raise awareness and facilitate research into the neurodegenerative diseases known as Batten Disease.
We offer guidance and support to families and the professionals who work with them. We increase awareness of the disease and fund research to identify potential therapies and a cure.
We support families from diagnosis, through their journey with Batten disease to enable you and your family to have the best quality of life. Please contact us if you feel you need our support.
Who to contact
- Telephone
-
0800 046 9832
- support@bdfa-uk.org.uk
- Website
- Batten Disease Family Association
- Notes
Charity number: 1084908
Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.