Down's Heart Group

We are a charity offering support and information relating to heart conditions associated with Down's Syndrome.

We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before, during and after heart surgery. We can also offer you support if your child has not had surgery for any reason and support to families who are bereaved.

We can be contacted at any time in an emergency on our telephone helpline.

Our telephone system will try to connect you to someone immediately, but as the helpline is staffed by volunteers, you may be directed to the answerphone. Please leave a message, contact details and some idea of the best time to call you. Someone will get back to you as soon as possible.

Who to contact

Contact name
Penny Green
Contact position
Information Team
Down's Heart Group

Charity number: 1011413

Other details

Referral required?
Referral and availability notes

Self or professional referral


Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.
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