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Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
0300 111 4000 (helpline)
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
Locate is a free online resource providing a wealth of information, services and activities to help you maintain a healthy, happy and independent lifestyle. You can access support and wellbeing services from thousands of organisations with just a few clicks of a button! Please see…
Usher syndrome is a genetic or inherited condition that affects hearing, vision and balance. If you have Usher, you can achieve a great deal with the right support. Please see our website for further details.
0300 330 9256
Tired Out is Family Fund's sleep support hub for families raising disabled and seriously ill children to find help and information about sleep issues. The hub is a website and was created by Family Fund in partnership with charities such as Scope, National Autistic Society…
01904 550 055
NHS England and NHS Improvement North East and Yorkshire exists to support healthcare commissioning and delivery and to provide professional leadership for finance, nursing, medical and specialised commissioning. We also play a key role in the assurance and delivery process of foundation trusts and NHS…
Family hubs are part of a government programme, designed to bring people together from the council, NHS, community organisations and more, to support families all in one place. You can get support from pregnancy right up until your child turns 19, or 25 if they…
03000 261 111
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
Sightline: 01233 64 81 70
Navigate is a phone based support service for parents and carers whose children have either been diagnosed with a disability within the past twelve months or who are on a pathway to a diagnosis. We offer up to six support sessions for parents with their…
0808 800 3333
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and…
01427 718 093

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