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We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
Helpline: 07939 046 030
We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…
07854 543 846
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder and to professionals who work with them. We offer contact with families where someone has the same rare chromosome, gene disorder…
01883 723 356
We offer support and information to patients, their families and anyone else affected by Aplastic Anaemia. Our aims are: To act as a support network, linking patients and families when requested. To circulate information about aplastic anaemia. To raise public awareness about aplastic anaemia. We…
0300 102 3202
We work with children and their families from across the UK to provide a unique, evidence-based therapy called 'Targeted Training.' The children who visit us have cerebral palsy, global developmental delay (GDD), or other problems of movement control. A course of therapy can help them…
01691 404 248
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Age range:
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Participates in Children and Young People's Network scheme:
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