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Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…
0300 111 4000 (helpline)
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
Locate is a free online resource providing a wealth of information, services and activities to help you maintain a healthy, happy and independent lifestyle. You can access support and wellbeing services from thousands of organisations with just a few clicks of a button! Please see…
If you have concerns about any of the services either you or your relative are receiving from Tees, Esk and Wear Valley's NHS Foundation Trust, our Patient Advice and Liaison Service (PALS) staff will listen and discuss options with you.   We aim to: advise and support…
Freephone: 0800 052 0219
Mobile: 07775 518 086
We know that looking after children with a range of special educational needs and/or disabilities (SEND) can be exhausting for parents/carers and you may sometimes feel like you need a short break 'time out' from your caring role. Our vision is that all children and…
03000 260 270
The community paediatric service is provided within four district localities and provides neuro-disability services to children up to school leaving age in accessible venues including clinics, schools, community hospital sites and health centres. Services include specialist multi disciplinary clinics including pre-school child development, feeding, cerebral…
Children’s or ‘Paediatric’ Physiotherapists assess children’s movement, mobility, posture, muscle strength and flexibility. We treat children mainly through exercise, movement and positioning through play. The Physiotherapists base treatment on an assessment of the child's individual needs and will discuss any goals with the young person…
0191 387 6346
SureSafe Alarms provides safety alarm services for children, teens and young adults. This can be those with epilepsy, nut allergies, acquired brain injuries, plus many more conditions. Our GPS alarms are also used for young adults with learning disabilities have more independence than they might…
0800 112 3201
We provide a service to all children and young people of school age, and their families, whether or not they are attending school. We offer advice and information, and assess health needs on children entering school and on transfer to secondary schools. Please see our website…
03000 263 538
Usher syndrome is a genetic or inherited condition that affects hearing, vision and balance. If you have Usher, you can achieve a great deal with the right support. Please see our website for further details.
0300 330 9256

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