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Pendragon is a multi sensory centre - a special place for special people. We are located in Northallerton and will provide support and make a real difference to the lives of those with physical, mental and emotional difficulties and their families and carers. We provide a wonderful range of sensory…
01609 760 330
We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…
07854 543 846
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We are national charity for people with lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for lupus research and lupus nurses is an essential part of our work. Meetings are held at the convenience…
01708 731 251
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder and to professionals who work with them. We offer contact with families where someone has the same rare chromosome, gene disorder…
01883 723 356
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838 739
Family Support Line 0300 666 0126
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We are the founders of the well known alternative communication system known as PECS (Picture Exchange Communication System). PECS consists of six phases and begins by teaching an individual to give a single picture of a desired item or action to a “communicative partner” who…
07375 101 634
SureSafe Alarms provides safety alarm services for children, teens and young adults. This can be those with epilepsy, nut allergies, acquired brain injuries, plus many more conditions. Our GPS alarms are also used for young adults with learning disabilities have more independence than they might…
0800 112 3201

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