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We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We are the founders of the well known alternative communication system known as PECS (Picture Exchange Communication System). PECS consists of six phases and begins by teaching an individual to give a single picture of a desired item or action to a “communicative partner” who…
07375 101 634
We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…
07949 256 302
AllergyMedic is a professional clinic offering allergy tests with special focus on food allergy and food intolerance. The clinic is an integrated and unique setting that combines the academic knowledge and experience of Medicine, Allergy, Immunology and Nutrition to provide an effective service to adults…
0203 605 2138
We help people who have a spinal injury or any type of brain damage such as that caused by cancer, haemorrhage, brain surgery, head injuries and neurological conditions. Please see our website for further details.
0161 707 6441
We are a children’s heart charity. We work with individuals and organisations concerned with children and young people who have health and educational needs due to acquired or congenital heart conditions. Congenital Heart Disease (CHD) is the most common birth defect in the UK. Thousands of…
0300 561 0065
We are a national charity, providing information and support to people with Coeliac Disease and Dermatitis Herpetiformis, their friends and family and anyone with an interest in the gluten-free diet. We offer a range of tools and advice to help you manage your diet and…
0333 332 2033
We support people with Cystic Fibrosis, fund research and work to improve standards of care. We promote excellence in research and clinical care, as well as providing practical support and advice to people with Cystic Fibrosis and their families. Our helpline offers support and information for…
Helpline: 0300 373 1000
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
Usher syndrome is a genetic or inherited condition that affects hearing, vision and balance. If you have Usher, you can achieve a great deal with the right support. Please see our website for further details.
0300 330 9256

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