PANS/PANDAS UK Charity
Does this information need updating?PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for Medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for Young People age 12-17 with the condition.
Facebook group for Adults
Links to further Research
Advocacy and support from the charity
Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Who to contact
- Contact Name
- Paula Scott
- Contact Position
- PA to Chair of Trustees and Community Support Executive
- Telephone
- 07425856181 07425856181
- paula.scott@panspandasuk.org
- Website
- https://www.panspandasuk.org
- Scan to visit this website
Where to go
- Notes
All of Bracknell covered. We provide support via our Facebook group PANS PANDAS UK.
Time / Date Details
- Time of day
-
Afternoon
Evening
Morning - Session Information
-
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.
Costs
- Details
- Free at point of access, supported through the PANS/PANDAS UK Charity.
Availability
- Referral not required
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
https://www.panspandasuk.org/for-educators
Related Links
Last Updated
Last updated: